Bloody Long Walk: Newcastle Walkers to Tackle 35km Challenge This Weekend

Residents from Newcastle and surrounding areas are gearing up for a gruelling 35km walk on Sunday, 25 August, to raise funds for the Mito Foundation. The event, known as The Bloody Long Walk, aims to support those affected by mitochondrial disease (mito) and increase awareness of this devastating condition.

Participants will set off from Redhead Beach at 6:30am and follow a scenic route, finishing at Foreshore Park after more than seven hours of walking. With over 1,000 walkers expected, the event promises to be both challenging and inspiring, as individuals and teams collectively aim to raise more than $300,000 for the cause.

Mitochondrial disease is a genetic disorder that prevents cells from producing the energy needed for vital bodily functions, leading to severe and often fatal consequences. The funds raised will support research, awareness, and resources for families impacted by this condition.

Among the participants are Nicole and Carl Baldry, leading a team called Henry’s Heroes in memory of their son Henry, who tragically passed away from mito at just nine days old. The Baldrys have participated in The Bloody Long Walk every year since 2016, rallying community support and raising vital funds in Henry’s name.

“We walk each year in memory of our son Henry and to raise awareness for mito. The support from our community has been overwhelming. Every dollar raised brings us closer to finding a cure. We’re looking forward to many more walks and plenty of blisters!” said Nicole Baldry.

To date, Henry’s Heroes has already raised over $6,700.

Mito Foundation CEO Sean Murray highlighted the significance of the event in supporting families nationwide. “The Baldrys’ story is just one of many. Across Australia, families face the harsh realities of mito, with around 70 Australian children expected to develop a life-threatening form of the disease each year. That’s one child every six days. Most children diagnosed with mito don’t survive beyond the age of five,” Mr Murray said.

He added, “We’re hopeful that recent scientific advances will lead to better outcomes for those diagnosed with mito. Our goal is to prevent as many children as possible from enduring this life-threatening disease and to ease the burden on families and communities.”

For more information on The Bloody Long Walk and how to get involved, visit: www.bloodylongwalk.com.au/newcastle.

Event Details

• Start: Redhead Beach
• Finish: Foreshore Park
• Date: Sunday, 25 August 2024
• Start Time: From 6:30am

A course map is available here: Newcastle Course Map.

About the Mito Foundation

The Mito Foundation provides support for people impacted by mitochondrial disease and funds essential research into the prevention, diagnosis, treatment, and cures for this complex condition. The foundation also focuses on raising awareness and education about mito to help families and the broader community understand the challenges it presents.

About Mitochondrial Disease

Mitochondrial disease is a group of genetic disorders that impact the mitochondria, the energy-producing structures in cells. When mitochondria fail to function properly, it can lead to the breakdown of essential bodily functions, affecting one or multiple organs and potentially resulting in organ failure. The condition is often debilitating and can be fatal, with no known cure and limited treatment options.

Mitochondrial disease is one of the most common inherited metabolic disorders, with more than 350 types identified through genetic testing. The condition can affect anyone, at any age, and its symptoms vary widely, often making it difficult to diagnose. In Australia, it is estimated that one child is born with a life-threatening form of mito every week, with most not surviving beyond their fifth birthday.

Additionally, one in 200 people carry genetic mutations that increase their risk of developing mito. While many may be asymptomatic, others could experience a wide range of health issues, including dementia, diabetes, and seizures, often without realising the underlying cause. The disease’s complexity and unpredictability make it a major challenge for families and healthcare providers alike.